Diabetic Unicyclists

[dunawan]

I am diagnosed with type one diabetes. Am I alone here?


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dunawan

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[johnfoss]

My niece, who is deaf, is also type I. She can ride, but doesn't do it
often. Don't worry, there are others as well!


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johnfoss

John Foss
Email: "jfoss" at "unicycling.com" -- www.unicycling.com
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"pretty much every trail that we've done on the California or Moab Muni
weekends is an XC trail." -- Kris Holm, on XC from a North Shore point
of view
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[Peter Haworth]

On Tue, 6 Mar 2007 14:28:37 -0600, dunawan wrote:
> I am diagnosed with type one diabetes. Am I alone here?

I was diagnosed 13 years ago, within a year of learning to ride (I
don't remember exactly how long it was, or even which came first).

Unicycle conventions play merry hell with my control, what with the
usually extreme differences to my normal food, exercise and sleep
patterns (not to mention climate and timezone if it's abroad). So I
just have to keep a closer eye on things by doing more blood tests,
and being prepared to adjust my sugar levels up or down at any time
with extra food or insulin.

As with any other activity, diabetes is no reason to give it up.
I have shied away from endurance races though, but this is due in
equal part to my wimpiness.

--
Peter Haworth
"There are two kinds of people, those who finish
what they start, and so on..."
-- Robert Byrne

[Into the blue]

I'm type 2.
I've been injecting myself with insulin twice a day for the last
eighteen years.
The novelty wore off after about a month.

When I go riding I always make sure I have a bottle or two of Lucozade
in my rucksack.
Never had a hypo on the wheel.
Yet.


--
Into the blue

\"now listen up, you primitive screwheads...see this?...this is my
-boom- stick!\"
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[Into the blue]

Wait...
I can never remember if type 2 is injection dependant or tablet
dependant.

Whatever.
I'm on injections.


--
Into the blue

\"now listen up, you primitive screwheads...see this?...this is my
-boom- stick!\"
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[dunawan]

Its not stopping me from riding. Nothing will stop me from unicycling.
The only thing that would stop me is if I was physicly unable to ride a
unicycle (God forbid). And even at that I would still try to find a way
around it.


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dunawan
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[abridged]

dunawan wrote:
> I am diagnosed with type one diabetes. Am I alone here?



I was diagnosed type 1 about 5 years ago and inject myself with
quick-acting insulin every time I eat anything with carbohydrates and
with long-acting insulin just before going to bed at night.

I took up unicycling about 1.5 years ago. Started on a 24 inch wheel
and then got interested in distance riding and now ride mostly on the
Nimbus 29er. I ride at least 30 minutes everyday with frequent rides
of about an hour or so. Last year, I participated in the American
Diabetes Association's Tour de Cure and completed 30 miles of the first
day on my uni. It was a tough 5-hour ride with lots of hills and I
still felt like a beginner. I didn't know about seatpost rail adapters
then and it was the seat discomfort that ultimately stopped me from
finishing. Diabetes management was challenging on the ride in that it
was very hard to eat enough to keep my glucose up. I found that after
the first two hours, I needed about 35 grams of carbohydrates every 20
minutes while riding with no insulin dosing. Checking on the glucose
level every ten miles or so helps. I'm considering trying again this
year.

I've noticed a direct association between my glucose levels and my
unicycling performance. Of course, when I am hypoglycemic (below 75
mg/dL), it's very difficult to balance and ride. But it's interesting
that even with glucose levels between 80 and 100, I have a more
difficult time freemounting and carving out turns. My best performance
occurs when my glucose level is between 120 and 150. Higher than 150,
and my performance degrades again. I carry a granola bars with me all
the time so that I can immediately correct any hypoglycemia. In fact,
I mounted a small under-seat bike pouch on the seat post of my Nimbus -
inside: ID with Diabetic alert info and phone numbers, granola bar,
coins for a phone call, and bandaids. It's always there for
emergencies. Gotta wear wrist and hand protection because diabetics
are at greater risk of infections. When I am not unicycling, I try to
keep my glucose levels between 80 and 110.

Sounds like a lot of work, but actually, unicycling helps me manage my
diabetes better. I am better aware of my glucose levels and because of
this awareness, I am in better control.

Good luck,
-David


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abridged
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[dunawan]

abridged wrote:
> I was diagnosed type 1 about 5 years ago and inject myself with
> quick-acting insulin every time I eat anything with carbohydrates and
> with long-acting insulin just before going to bed at night.



I use the Humalog pen for my fast-acting (every time i eat) and 22
units of Lantus every night and every morning. ( Im guessing the
Humalog pen and lantus is also what you use.)


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dunawan
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[johnfoss]

That was a great post by abridged!

My neice has a pump. The old pump required monitoring, and basically
did an automatic "base" injection, but you still had to test and bolis
yourself around meals and when needed. I think she's getting a new pump
that monitors her blood sugar all by itself. If it works, it should
have a huge impact on her long-term health as the extreme highs and
lows she sometimes hit have long-term effects. Plus I don't think she
has to stick herself anymore, or at least not as much.

For abridged, I wonder if on-ride stuff like Power-Gel would work for
the big rides? Or they might hit you with too much glucose at once? I
have found they work well for me in the right circumstances, namely a
long race or other long, hard event. They are much less useful for
recreational rides, or rides with a lot of stops.


--
johnfoss

John Foss
Email: "jfoss" at "unicycling.com" -- www.unicycling.com
-----------------------------------------------

"pretty much every trail that we've done on the California or Moab Muni
weekends is an XC trail." -- Kris Holm, on XC from a North Shore point
of view
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[dunawan]

johnfoss wrote:
> That was a great post by abridged!


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dunawan
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[dunawan]

Yeah im actually looking into an insulin pump, I have a feeling it will
make living with diabetes much easier. Especially considering its the
closest thing to an artificial pancreas.


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dunawan
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[Raggypants]

One of my best friends has an insulin pump, one of the new ones that do
everything automaticly.

I watched him inject for about four years and then he dissapeared for
about a week and came back with the pump. He loves it.

He plays touch football and rugby and leads a pretty active life, alas
he just left to go to uni so i wont see him again for a while :(

Tom


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Raggypants
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[hecklar]

Yeah, i'm type 1 (and so are you, Into The Blue, haha). When you go on
random, hard rides it sometimes gets tricky. Sometimes i don't get the
shakes, but yet i can barely stay upright on my uni, so i know right
away that i need sugar. It's really a big pain in the a**.

And here's a warning to you: Pay close attention to your sugars when
you're alone. On a Sunday in November, i came home around noon and
fell asleep on the couch... skipping lunch. I guess i went into a
non-comatose, but yet very hypoglycemic state. My girlfriend called me
that evening, and since she knew i was home, yet wasn't picking up the
phone, she just assumed the worst and called the paramedics while she
drove over to my place. When the paramedics arrived, oddly, i answered
the door. Seems fine, right? Well, no. That extended, hypoglycemic
sleep made me lose my memory. I knew who i was, and the names of my
friends, but that's about it. I didn't know where i worked, what year
it was, which city i was in; nothing like that. I had to stay in the
hospital for a week while i had all sorts of MRI and CT scans done to
my head, and then i couldn't return to work for another 3 weeks while
my girlfriend babysat me.

I've somewhat recovered, but my memory is only about 65% as good as it
used to be. Seriously, i feel retarded now. My grandparents remind
*me* to do stuff now! And, i guess it's such as rare thing that the
Ottawa Hospital is now doing a research study on what happened to me.

That's just a warning to you. Definitely keep riding, but make sure
you know what's going on with your sugar while you're doing it.


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hecklar
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[zfreak220]

wow, nice girlfriend. hope you get better.


--
zfreak220

iridemymuni wrote:
> i think everybody agrees when i say you lucky son of a bitch



howdigetsogood wrote:
> man i used to think scooters were totally lame, but after that 'video'
> (http://www.unicyclist.com/forums/showthread.php?t=57071), oh wait
> nevermind i still do.
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[abridged]

hecklar wrote:
> ...That extended, hypoglycemic sleep made me lose my memory. I knew who
> i was, and the names of my friends, but that's about it. I didn't know
> where i worked, what year it was, which city i was in; nothing like
> that. I had to stay in the hospital for a week while i had all sorts
> of MRI and CT scans done to my head, and then i couldn't return to work
> for another 3 weeks while my girlfriend babysat me.
>
> I've somewhat recovered, but my memory is only about 65% as good as it
> used to be. ...



Yes, I have experienced the same kind of thing. If my blood glucose
goes too far above or below normal, my short-term memory goes with it.
It is a very strange experience that has been the source of a lot of
heart-ache. One thing that really helps helps me - Ginko Baloba. I
really think two pills a day makes an incredible difference in my
short-term ability . The effects are pretty quick, too. You'll find
them in any vitamin section of your local supermarket or drug store.

Good luck,
-David


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abridged
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[abridged]

johnfoss wrote:
> ...For abridged, I wonder if on-ride stuff like Power-Gel would work for
> the big rides? Or they might hit you with too much glucose at once? I
> have found they work well for me in the right circumstances, namely a
> long race or other long, hard event. They are much less useful for
> recreational rides, or rides with a lot of stops....



Thanks John. I've tried power gels from time to time and they seem most
useful for times when my glucose level is too low or is rapidly
declining. I try hard to avoid those instances, but when they occur,
granola bars don't act quickly enough. After thinking about it from
this post, I'm going to pack one in my emergency bag on my seatpost.
But you're right, as a "maintenance" snack the power gel is too quick
and too much at one time.


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abridged
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[abridged]

dunawan wrote:
> I use the Humalog pen for my fast-acting (every time i eat) and 22 units
> of Lantus every night and every morning. ( Im guessing the Humalog pen
> and lantus is also what you use.)



That's about the same as my treatment. I've been considering the pump
for some time, but just haven't come to that decision point yet. I do
have a concern about what happens if I were to fall while wearing one.
They're not cheap.

Anyone out there use Exubera, the inhaled insulin?


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abridged
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[dunawan]

abridged wrote:
> I do have a concern about what happens if I were to fall while wearing
> one. They're not cheap.



+1




> Anyone out there use Exubera, the inhaled insulin?



I heard about that a few years ago, that it was supposed to come out in
june (cant remember what year)...Ive never heard of it after that
though.


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[cafi]

abridged wrote:
> I was diagnosed type 1 about 5 years ago and inject myself with
> quick-acting insulin every time I eat anything with carbohydrates and
> with long-acting insulin just before going to bed at night-David




my father lives that routine for 40 years and I‘ve learned a lot from
this experience. The main thing is: in order to keep the diabetes under
control he must have a perfect health - or as close as possible. So
nowadays he‘s 54 and is almost better fitted then me.

so it‘s has a good side, even being the most common thing to say, in
practice that‘s true. The needle‘s and the routine will become...
routine and unicycling can be your therapy/hobby/sport/job…

good luck!!!!!


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[epistolize]

hecklar wrote:
> Yeah, i'm type 1 (and so are you, Into The Blue, haha).



mm me too.:rolleyes:

i have been since about the age of 11.



> It's really a big pain in the a**.



:mad:

fo' sho'.

_____________________________________

i don't really care what anyone says at the moment about diabetes
preventing me from riding. riding makes me feel good. as long as i feel
like riding i'll ride, now that i've found that i'm able to (i only
started last year). however feeling low makes it difficult for me to
ride so i don't let it happen too often, and if i feel a hypo coming
on, i won't ride until my levels are sorted out.

i think riding is a good motivation for me as i hate the sluggish, "i
don't wanna ride" feeling that is associated with going to the loo
really often and being really hot and bothered:mad: instead of
chilled:cool: and ez when my blood sugars are running too high, and
it's just harder to focus when riding in that kinda state.

what really annoys me though is that i like to ride whenever,
whereever- you know: just when the urge takes me, and to have to be
aware of the state of my sugars and balancing my foods and everything
and planning how much i'm going to ride and so on, it just feels really
limiting.

i used to use Humalog and Lantus, but now i'm on two lots of Novomix 30
a day.

people often assume stuff when they see me with my unicycle. i was
approached this evening by someone canvassing for bone marrow donors or
something and they were like, "ah, you look really young and fit and
healthy- you'd be ideal.." i went to go and check it out- the first
question i was asked by one of the people at the temporary centre was,
"are you between 18 and 30" or something like that. then "are you
healthy?" and i was like "um... well..." but their impression of me had
been- he rides a unicycle, he must be fit.

anyway, i told them i had diabetes and they said they had to get
someone else who referred me to a chick upstairs in that building (who
i thought was pretty attractive by the way and for whom i'm sure i'd
have signed almost anything if she'd wanted me to... [sorry for
thinking from my saddle, but i won't deny it- that's how it was:o ]).
well, aaanyway, the long and the short of it is that she asked me how i
managed my diabetes; by diet or insulin, and after i replied, her face
fell:( and she said i couldn't do it even if i'd wanted to.

yeah, having diabetes sucks. and unfortunately, you can't just ignore
it.

but at least you're not alone.:)


--
epistolize

affirmation: i will hit tricks in a heavy stylee, quit prehoppin
and flow freely:cool:

organise my th:rolleyes:ughts into lines

:D and WORK "I lli T!
eratepeoplegetthefulleffectofalphabetsoup?"
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